Name: 【TED】Jamie Heywood: The big idea my brother inspired (Jamie Heywood: The big idea my brother inspired)
Uploaded: 2017-01-10T08:55:44.000Z
Duration: 16 min 55 s
Description: Thousands of YouTube videos with English-Chinese subtitles! Now you can learn to understand native speakers, expand your vocabulary, and improve your pronunciation...

Past simple

When my brother called me in December of 1998,

which is a disease that the average lifespan is three years.

to learn a new way of thinking about life.

And even though Steven passed away three years ago

I think adversity is not even the right word.

We looked at this and we said, "We're going to do something with this

about one of the things that we decided to do,

which was to think about a new way of approaching healthcare.

I want to talk about it in the context of a story.

But it's just a story. And I want to go beyond the story,

"Given my status, what is the best outcome

I can hope to achieve, and how do I get there?"

is what we are here to do in medicine, is what everyone should do.

And those questions all have variables to them.

All of our hopes and dreams, what we want to accomplish,

is different, and our paths will be different,

But it's a story until we convert it to data

was to take Steven's status, "What is my status?"

and go from this concept of walking, breathing,

So, the first set of pathologies, they end up in the stick man

but the rest of them are really what's important here.

Because Steven, despite the fact that he was paralyzed,

as he was in that pool, he could not walk,

he could not use his arms -- that's why he had the little floaty things on them,

he was raising his son, and he was productive.

And we took this, and we converted it into data.

But it's not a data point at that one moment in time.

It is a data point of Steven in a context.

Here he is in the pool. But here he is healthy,

but he can barely walk now, so it's impaired.

And he could still hold his wife's hand, but he couldn't do buttons on his clothes,

unable to breathe and move, over this time journey.

These stories of his life, converted to data.

when he was completely paralyzed, and unable to speak,

and unable to breathe, and he won an award for a historic restoration.

So, here's Steven alone, sharing this story in the world.

And this is the insight, the thing that we are

because we have gone away from the community that we are,

the fact that we really do love each other and want to care for each other.

We need to give to others to be successful.

There are so many other people sharing their stories.

Not stories in words, but stories in data and words.

And we convert that information into this structure,

this understanding, this ability to convert

those stories into something that is computable,

We did this for ALS. We can do this for depression,

These are not simple, they are not internet scalable;

to find the meaningful information about the disease.

So, this is what it looks like when you go to the website.

And I'm going to show you what Patients Like Me,

the company that myself, my youngest brother

Here are the actual patients, there are 45,000 of them now,

His name is Mike, and he is uniformly impaired

on cognition, vision, walking, sensation.

Those are things that are different for each M.S. patient.

Each of them can have a different characteristic.

You can see fibromyalgia, HIV, ALS, depression.

Subtitles ListPlay Video

【TED】Jamie Heywood: The big idea my brother inspired (Jamie Heywood: The big idea my brother inspired)

anxiety

context

engage

concept