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  • - [Narrator] Smell.

  • We know when it's good, and we know when it's bad,

  • but there's a woman in Scotland -

  • - [Voiceover] I'm Joy Milne.

  • - [Narrator] Who can smell the unsmellable.

  • - [Voiceover] My nose went on fire.

  • - [Narrator] Joy Milne is the only known person

  • who can smell Parkinson's Disease.

  • - [Voiceover] I have an extremely sensitive sense of smell.

  • (sniffing)

  • I can smell it mainly on the forehead

  • and the back of the neck.

  • - [Narrator] To Joy, it has a greasy musky odor.

  • - [Voiceover] It is just a heavy smell to me.

  • - [Narrator] She first noticed it on her late husband,

  • Les Milne twelve years before he was diagnosed.

  • - [Voiceover] I just thought he was tired

  • and he wasn't showering enough.

  • It wasn't very welcome of course,

  • me saying to him, well, you're smelling.

  • - [Narrator] It wasn't until she attended a conference

  • with other Parkinson's patients that

  • she realized the smell was something more.

  • - [Voiceover] When I walked into the room I thought gosh,

  • these other people smell the same as Les does.

  • At the end of the meeting I stood up and said,

  • why were they not investigating the smell of Parkinson's.

  • - [Narrator] No one was investigating

  • because no one else could smell it.

  • Researchers set up a controlled experiment

  • to test Joy's nose.

  • She was asked to distinguish a set of t-shirts

  • worn by those with and without the disease.

  • She insisted one of the subjects

  • in the control group had the musky scent.

  • - [Voiceover] The man rang about eight months later

  • and said, “I've got Parkinson's.”

  • So, I had pre-diagnosed somebody.

  • - [Narrator] By the time most people are diagnosed

  • 80 to 90 percent of the damage is done.

  • So Joy's mission is to help scientists

  • improve early detection methods.

  • - [Voiceover] If they can find these people earlier,

  • it would stop this anguish.

  • That would make such a difference.

- [Narrator] Smell.

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A2 US GreatBigStory smell parkinson narrator diagnosed sniffing

Sniffing Out Parkinson's: A Nose for Trouble

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    許大善 posted on 2019/09/28
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