Subtitles section Play video
-
J: Hi Everyone! C: Hi!
-
J: Recently Scope, the disability charity, have started a campaign called #EndTheAwkward
-
which is supposed to end the awkwardness around talking about disability.
-
We are going to talk about what it's like to be in a relationship when one of you has a disability and one of you doesn't.
-
And various people have asked us various questions about what it's like, so we thought we would answer some of them.
-
So one of the questions that I get asked quite a lot actually is
-
did I hide my disability from Claudia? and I think I'm pretty open about it.
-
I'm very open about having a disability, but obviously I've had it for such a long time.
-
C: Well we met online, so actually I only saw photos and
-
if I'd maybe really looked I maybe would have seen your hearing aids, but I wasn't looking out for like
-
does she wear hearing aids? Does she have a walking stick? Is she in a wheelchair?
-
You know, I wasn't searching for those, and then when we met up for our first date,
-
you were like typing away on your little laptop and you had that little thing in your ear,
-
and I thought, I immediately just thought it was one of those like really sort of Noughties kind of
-
erm, bluetooth handsfree kits. And then we started chatting and then I think
-
I then did notice that they were actually hearing aids.
-
J: There were two of them, and they were still in my head.
-
C: Yeah, so then I was like 'ok', but I didn't think anything of it,
-
and then as the date went on you were just kind of quite open and like 'yeah, did you know, erm,
-
I'm actually I'm completely deaf and I lipread'
-
and so I was like 'but how do you sound so like, how do you have such good pronunciation' and she said
-
'Oh, well I only lost my hearing when I was twelve and I taught myself how to pronounce before I lost
-
my hearing completely' and I thought 'Oh, that makes sense'.
-
And then she said 'Oh and also did you know I'm blind in one eye?' and I was like 'No. How would I know that?'
-
You can't tell. I don't know what they think is going to happen. They're gonna 'really, can you see?
-
how many fingers?' and you're like 'Oh my god! Two! I can suddenly see with that eye'.
-
Yeah, and then I was like 'How come you're blind in one eye and you're deaf?' and she was like
-
"Oh, I've got a rare condition' and then we just carried on our date
-
and I had a really nice time, and yeah, I did go home and google those conditions
-
because I was like, well what are they? As I'd never heard of those things before.
-
You know just the same reason you would... J: You googled other things about me.
-
C: Oh yeah, the thing that I was worried about more from your big reveal was that you were a quaker.
-
I was like ok, is she some weird like, is this some weird like cult where they like don't drink alcohol
-
Do they believe in sex before marriage?
-
Because that would be a kind of... J: That was the main concern.
-
C: That was the main concern of what i googled actually, that night. J: Yup.
-
C: Physical attraction was there, despite her physical disabilities. J: Aww.
-
C: So she wasn't lacking in any way, to me. J: Aww, that's so sweet.
-
J: Our meeting, obviously, there weren't many things that actually seemed to faze you at all,
-
but then when we actually started to date and you were staying at mine more,
-
I think it kind of brought home to you that things were a bit...
-
C: Yeah, I think the main thing was, erm, that you had like a carer, that would come in
-
erm, everyday, it was then.
-
J: All the help that you do now.
-
C: Yeah. So um, so you had this carer who was a lovely little Irish lady,
-
but quite like...
-
J: As someone with a disability, you're so used to not having...
-
erm, any issues with your personal space, there is no privacy, there was no such thing.
-
Because if you need someone to come and help you in the shower, you can't then be like,
-
'Oh no, but don't look, I'm so embarassed. But please wash me'.
-
C: So one example of this particularly was
-
I was round at Jessica's house and we were in her bedroom in her bed,
-
and it was like early morning and we'd woken up and we were like, you know...
-
expressing our attraction to one another, and um, suddenly a knock on the door and it was like,
-
J: 'Helloo' C: Yeah, 'Helloo'. And um and you were like 'one minute, we'll be out in a minute'
-
and she just didn't really listen to that and she came straight in
-
and I was like 'Bloody hell' and like pulled the duvet right up over my naked body.
-
She was just like 'Oh, sorry about that, yeah'. And then like,
-
J: And then she sat on the bed! C: And then she was like 'Oh, don't worry about me, I've seen it all before'.
-
J: 'Don't worry about me!' C: Is that Irish? I don't know.
-
C: Yeah, anyway, then she just sat on the bed as I was just sitting here like 'Errr'
-
and then she was like 'Ok', so she just stood up
-
completely stark naked and walked around while this little old lady was just like
-
'Oh, what are you guys doing today?' and I was just like 'Erm,
-
is anyone else finding this whole situation a little bit, like, unusual?
-
This is not normal. Erm. In the end I was just, 'Oh, sod it' and got my tits out in front of her as well,
-
because I had to get up to get changed.
-
And then you chucked me a nightie, didn't you. You were like 'put that on'.
-
J: Yeah and then when we moved into the new house obviously we had to trial lots of different carers,
-
and see who worked and who didn't, and you were much more open to having people.
-
C: Yeah so when I first started telling people about Jessica i was like ' Yeah, like, this is her'.
-
She had a photo and everyone was like 'Wow, she's so hot, she's really nice'.
-
I was like 'Yeah, so also she has this really rare condition...' J: two of them.
-
C: 'which makes her erm, you know, a nerve condition, which makes her blah blah blah'
-
because that sounds like a lot of things to get used to.
-
It's like...' J: yeah C: It's almost like they were suspicious of you because you didn't drink.
-
And then they were like 'Why can't you eat sugar though? What actually happens?'
-
They were a bit like, are you just one of those like health conscious control freaks.
-
J: Yeah, this is too many medical issues here.
-
You must be a freak. C: Yeah. You must be a fake.
-
J: But then I'd just, you know, be open with my story. Here you go.
-
Here's what I've got, here's what it does to me.
-
C: To be honest at the end of the day, it doesn't like effect them, so why should they be bothered by it?
-
Like, why should it bother them that you don't eat certain food and don't drink alcohol.
-
C: Well, I think your chronic fatigue effects it quite a bit. Sometimes you just crash.
-
Yeah, which is fine. Normally we manage it fine, I'm like 'ok'. You know, I help you to bed or you lie down.
-
I mean, to be honest you manage it pretty well. But when it goes wrong is when I'm also feeling pretty tired,
-
and I'm in a bad mood. J: Yeah. C: And I feel a bit like, well I can be tired... like...
-
it's so unfair that you get to be tired all the time, what about me? I want to be tired today.
-
J: I do this thing called 'ragdoll' where I just get beyond the limit
-
of tiredness, and my body just stops.
-
C: You always say that the thing you like about me is that I just kind of carry on.
-
J: Oh yeah, I know. The thing I absolutely love is that you just carry on,
-
is that you're just like... C: Like just now, she just fell up the stairs onto her head.
-
Not fell up like dramatically, but just like a slow motion like....
-
J: I just faint every now and then.
-
C: And I just carried on drinking my tea and then turned around and then saw her like,
-
faceplanted on the stairs and I was just like 'Are you ok darling?' "Yeah'
-
J: My favourite part of that though is that when I'm all floppy and tired and useless and ill
-
and you're helping me up the stairs, you still squeeze my bum.
-
C: It doesn't sound that good. J: No, it's so important, it really is,
-
because I think when you're a disabled person and you're dating there are these two camps
-
that people fall in. Either where they're like 'Oh my god, no, I can't cope with that. Please leave'.
-
And the other camp where they're like 'Yes, let me mother you'.
-
And they turn you into this weird, non-sexual object that they are going to look after forever.
-
C: It's just like anything. It's just the way life is and that's just what you get used to.
-
J: Human being. C: As I said at the beginning, it's what you have, it's not what you lack,
-
or what you're... it's not your flaws is it. It's what you give and have. And then that overrides any negatives.
-
They shouldn't even be seen as negatives. They're just things you just deal with.