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  • Francesca Fedeli: Ciao.

  • So he's Mario. He's our son.

  • He was born two and a half years ago,

  • and I had a pretty tough pregnancy

  • because I had to stay still in a bed for, like, eight months.

  • But in the end everything seemed to be under control.

  • So he got the right weight at birth.

  • He got the right Apgar index.

  • So we were pretty reassured by this.

  • But at the end, 10 days later after he was born,

  • we discovered that he had a stroke.

  • As you might know,

  • a stroke is a brain injury.

  • A perinatal stroke could be something

  • that can happen during the nine months of pregnancy

  • or just suddenly after the birth,

  • and in his case, as you can see,

  • the right part of his brain has gone.

  • So the effect that this stroke could have on Mario's body

  • could be the fact that he couldn't be able to control

  • the left side of his body.

  • Just imagine, if you have a computer and a printer

  • and you want to transmit, to input to print out a document,

  • but the printer doesn't have the right drives,

  • so the same is for Mario.

  • It's just like, he would like to move his left side

  • of his body, but he's not able to transmit the right input

  • to move his left arm and left leg.

  • So life had to change.

  • We needed to change our schedule.

  • We needed to change the impact that this birth had

  • on our life.

  • Roberto D'Angelo: As you may imagine,

  • unfortunately, we were not ready.

  • Nobody taught us how to deal with such kinds of disabilities,

  • and as many questions as possible started

  • to come to our minds.

  • And that has been really a tough time.

  • Questions, some basics, like, you know,

  • why did this happen to us?

  • And what went wrong?

  • Some more tough, like, really,

  • what will be the impact on Mario's life?

  • I mean, at the end, will he be able to work?

  • Will he be able to be normal?

  • And, you know, as a parent, especially for the first time,

  • why is he not going to be better than us?

  • And this, indeed, really is tough to say,

  • but a few months later, we realized that

  • we were really feeling like a failure.

  • I mean, the only real product of our life,

  • at the end, was a failure.

  • And you know, it was not a failure for ourselves in itself,

  • but it was a failure that will impact his full life.

  • Honestly, we went down.

  • I mean we went really down, but at the end,

  • we started to look at him,

  • and we said, we have to react.

  • So immediately, as Francesca said, we changed our life.

  • We started physiotherapy, we started the rehabilitation,

  • and one of the paths that we were following

  • in terms of rehabilitation is the mirror neurons pilot.

  • Basically, we spent months doing this with Mario.

  • You have an object, and we showed him

  • how to grab the object.

  • Now, the theory of mirror neurons simply says

  • that in your brains, exactly now, as you watch me doing this,

  • you are activating exactly the same neurons

  • as if you do the actions.

  • It looks like this is the leading edge in terms of rehabilitation.

  • But one day we found that Mario

  • was not looking at our hand.

  • He was looking at us.

  • We were his mirror.

  • And the problem, as you might feel,

  • is that we were down, we were depressed,

  • we were looking at him as a problem,

  • not as a son, not from a positive perspective.

  • And that day really changed our perspective.

  • We realized that we had to become

  • a better mirror for Mario.

  • We restarted from our strengths,

  • and at the same time we restarted from his strengths.

  • We stopped looking at him as a problem,

  • and we started to look at him as an opportunity to improve.

  • And really, this was the change,

  • and from our side, we said,

  • "What are our strengths that we really can bring to Mario?"

  • And we started from our passions.

  • I mean, at the end, my wife and myself

  • are quite different,

  • but we have many things in common.

  • We love to travel, we love music,

  • we love to be in places like this,

  • and we started to bring Mario with us

  • just to show to him the best things that we can show to him.

  • This short video is from last week.

  • I am not saying --

  • (Applause) —

  • I am not saying it's a miracle. That's not the message,

  • because we are just at the beginning of the path.

  • But we want to share what was the key learning,

  • the key learning that Mario drove to us,

  • and it is to consider what you have as a gift

  • and not only what you miss,

  • and to consider what you miss just as an opportunity.

  • And this is the message that we want to share with you.

  • This is why we are here.

  • Mario!

  • And this is why --

  • (Applause) —

  • And this is why

  • we decided to share the best mirror in the world with him.

  • And we thank you so much, all of you.

  • FF: Thank you. RD: Thank you. Bye.

  • (Applause)

  • FF: Thank you. (Applause)

Francesca Fedeli: Ciao.

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A2 TED mario mirror rehabilitation stroke started

【TED】Roberto D'Angelo + Francesca Fedeli: In our baby's illness, a life lesson (Roberto D'Angelo + Francesca Fedeli: In our baby's illness, a life lesson)

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    林彥君 posted on 2014/10/01
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